1yr; Day 562 – Vision of Jesus
Hi Everyone, Tonight’s post comes from Corey. She has shared on two different occasions about her dreams of God. Both dreams were described in a similar way recounting similar details leaving us to question not that God came to Corey but why is it that there is a...
1yr; Day 558 – another fight, more challenges
Hi Everyone, People ask me where my writing comes from. Typically, in my minds eye, I replay the day’s activities as if I’m rewinding a home video. As you know there are some very good days and very difficult days. On the difficult days it’s hard to watch the rerun...
1yr; Day 557 – You are a teacher
Hi Everyone, Unfortunately we do not have nursing on Tuesdays and Thursdays at the moment. By the time our night nurse arrives, I’m ready for bed and don’t have the energy to write. We will be interviewing new agencies this week and next to share Corey’s case with our...
1yr; Day 555 – Advocacy in Harrisburg
Hi Everyone, My trip to Harrisburg was just what I had hoped for. Senator Dominic Pileggi (Senate Majority Leader) set aside one hour to meet me. In attendance were two members of his general counsel. Today was not about Democrats, Republicans or Pro/Con Obamacare....
1yr; Day 554 – 1st bite of pizza
Hi Everyone, We hope you all enjoyed your holiday. We had a good weekend. First of all, I must say how incredibly grateful I am that Caitlin moved home. I know it’s only for a few months but her timing couldn’t be more perfect as we are having trouble with nursing...
1yr; Day 582 – Botox, foot drop and no therapy
Hi Everyone, It’s been a quiet weekend which is just what we needed after our long week. The presentation to the PA Brain Injury Coalition went well Friday morning. I spoke for 30 minutes with a 20 minute Q/A from the assembly. The Coalition is comprised of the Dept....
1yr; Day 552 – starting new
Hi Everyone, I have been preparing for my meeting with Senator Dominic Pileggi. Part of that preparation has been to reread parts of this journal. A year ago this week we were beginning the appeals for the forced discharged from Bryn Mawr. It’s strange to look back at...
1yr; Day 551 – passed soft food not liquids
Hi Everyone, Corey did very well in the swallow study; however, she did not pass liquid consistency yet. That’s okay, it’s a matter of time. Until then we still give her water through her peg tube for hydration. Now that she’s passed soft solid foods we celebrated...
1yr; Day 550
Hi Everyone, It was a beautiful day in New London! Corey had an early speech session followed by PT. It was so lovely out we decided to take advantage of the weather and our beautiful deck. Corey walked along the perimeter of the deck for 12’. I tried to film the...
1yr; Day 549 – Ambidextrous
Hi Everyone, Another big day of firsts for Corey! We were very excited for Alice’s visit this morning to show her the progress Corey’s made moving her left arm and opening her left hand. What I love best about our therapy team is their acknowledgement of Corey’s...