2yrs; Day 759 – Queen of Distraction

Hi Everyone, We are very lucky. We never lost electricity, the roof and the basement didn’t leak and we survived Sandy! Corey and I have tried to keep very busy the last several days. Today we had some moments that were touchy. Let me rephrase, “I” had some moments...

2yrs; Day 787 – just keep swimming

Hi Everyone, We work with Corey on rebuilding the connections for her short term and long term memory daily. I can usually tell how old she thinks she is by her memories and the questions she asks. Today she was 17. Our conversations included memories from the summer...

2yrs; Day 755 – counting feet

Hi Everyone, Happy Friday! I will be signing off for the weekend but before I do we’ve got more progress to report. PT/OT/ST has their goals and Corey has hers. She wants her feeding tube out and she wants to stop her daily Lovenox shots given in her belly. We’ve...

2yrs; Day 752 – persistence is key

Hi Everyone, Today was an unexpected day off. Medicaid approved 24 more visits for PT but we haven’t been approved for additional visits for Speech or OT…yet! I’m not sure if the requests were sent in late or if “they” are deliberating to see if Corey “needs”...