1yr; Day 445 – stealing baby jesus
Hi Everyone, We always wonder what the aftermath of a seizure will bring. Does it ignite new connections? Does it promote better accuracy of the gains she’s currently made or will it retract from the progress she’s made? Corey’s speech sessions include more than just...
1yr; Day 444 – Impossible = I’m possible
Hi Everyone, Today was the usual post seizure day. Corey was complaining of headaches (which is normal) but ibuprophen is a wonderful invention and seemed to give her relief! We went to see Dr. Brown for a follow up visit. Corey is healthy in every regard including...
1yr; Day 443 – I got nothin’
Hi Everyone, I’m sitting at the laptop searching for the words for tonight’s entry. All I can think of is a story the band director of our high school once shared with me. The students coming up from the middle school were given music in the summer and required to not...
1yr; Day 439 – corey’s christmas list
Hi Everyone, I had a very special day. Thank you for all the birthday notes! We converted our Family Room into Corey’s bedroom which is just off the kitchen. Her bed is positioned on an angle in the corner facing the kitchen. As I enter the kitchen from the foyer, I...
1yr; Day 438 – visit from an ICU nurse
Hi everyone, It was a rough day for our girl. I’ve called the ENT for a follow up appointment. We’ll be going back in on Monday. Corey’s mouth pain has intensified. We’re almost 90% sure it’s neurological and not clinical so we may just be looking for ways to help her...
1yr; Day 437 – vision testing
Hi Everyone, Our appointment went well today. Corey handled the long day beautifully. We left the house at 7am to drive into Philly for a 9am appointment. We don’t live 2 hours from Philadelphia but with rush hour traffic, parking and logistically moving Corey our...
1yr; Day 436
Hi Everyone, I haven’t written in a few days and it feels as if I’ve missed a month! I begin each daily post questioning what will I write? Some days it’s difficult to find the words and other days it’s difficult to edit because there is so much to share. Today is one...
1yr; Day 432
Hi Everyone, Corey is working hard and I’m happy to report another first. This afternoon she not only moved her left arm, she opened her left hand (delayed but on command) and she didn’t cheat with the right hand helping the left! It wasn’t a reflex move either…she...
1yr; Day 431 – renaissance means rebirth
Corey, The Christmas season is in full swing and I’m so happy to have you home. I know that you like to be the keeper of the traditions but on Thanksgiving, (while you were asleep), JohnPaul and Caitlin decided that we’re starting all new traditions this year. Having...
1yr; Day 430 – down the wrong pipe
Hi Everyone, Corey’s test was not successful YET. The test showed that she aspirated as she swallowed. The initial swallow was fine, but the subsequent swallows “went down the wrong pipe” as my mother would say. Corey does not know how to cough and doesn’t appear to...