1yr; Day 570 – the more I learn the less I know

Good Morning Everyone, For those of you who are parents, you will definitely understand the following scenario. Remember when you had your first child? You might have had some babysitting experience but never a 24/7 shift. The baby cries and you check the standard 3...

1yr; Day 568 – the caregivers struggle

Hi Everyone, It’s been a long weekend. Corey has not been herself since last Friday. She has been complaining of headaches and that her eyes hurt. She’s been lethargic for the better part of the weekend as well. I’m keeping a close watch on her. It could be the...

1yr; Day 565 – Advocates boxing gloves

Hi Everyone The following is a brief overview that represents the motivation behind why we must work with the Senate and Congress to fight for legislative changes that hopefully affect Insurance coverage. Yesterday I shared that not only were we being discharged from...

1yr; Day 564 – Corey’s Story

Hi Everyone, We continue to face many challenges but received a few amazing gifts today that reminds us perspective is everything! Today was actually a very difficult day as we continue to fight for therapy coverage. Now we are not only trying to find another agency,...

1yr; Day 593 – Resilience; a process or a trait?

Hi Everyone, Today was a good day for the Beattie woman. Caitlin and I headed to North Jersey to attend the BIA-NJ annual Conference and Corey worked hard at Bryn Mawr. I called to check in every 45 mins during the day and each time the staff shared she was asking for...

1yr; Day 563 – I am your GOD

Hi Everyone, We had no nurse today and all therapies were scheduled for the afternoon. Corey and I had a nice quiet morning. I love the mornings as she is usually bright and very chatty. Corey usually initiates the conversations depending on what she’s thinking or if...