3yrs; Day 1445 – KEP-RAGE
Hi Everyone, Today we saw the seizure specialist at Thomas Jefferson Hospital. Corey's last "quiet" seizure was thanksgiving eve. It caused facial paralysis to her left side with slurred speech. Fortunately, her muscles returned to full function within 12 hours...
3yrs; Day 1444 – Botox
Hi Everyone, For those of you following our carepage from the beginning, you may remember the blue ultra-flex braces Corey wore on both her legs. She has worn them on/off since the beginning of her inpatient days. The brace stretches the muscles in the back of her...
3yrs; Day 1443 – new eval’s Rx changes
Hi Everyone, This past week and weekend was so busy it feels like a month since I've sat down to write. Washington, D.C's trip was very encouraging. We met with a TBI specialists team. Dr. K is a physiatrist. A Physiatrist is a specialist in Neurology and Rehab...
3yrs; Day 1438 – from Corey + recipe
hello every one this is corey today was not a good day. my mom worked and i was angry and acting out. the only thing is that i do not truly remember why? on a positive note, i ended my day with a delicious dinner for my mom. i went to the refrigerator to find the...
3yrs; Day 1434 – from Corey + recipe
hi everyone, it is corey and today i slept until 1230. i still feel my headache there however it is not as bad. here is another recipe for you. we got very creative and mixed dijon and honey mustard, brushed the combo on the chicken. for the bread crumbs we use...
3yrs; 11 months – from Corey + recipe
hi everyone this is corey i have a really bad headache. its my goal to go one day without a headache but i don't think it is going to happen. i went to bryn mawr today anyway. i worked with Natalie on step exercises then i worked with Anne on pushups against a bolster...
3yrs; Day 1426 – bad week
It's been a bad week everyone! Not sure where the words will come from tonight? Tomorrow is a new day. The kids will be home this weekend and I'm hoping it will help Corey. I know our prayer warriors have been faithful in their daily devotional but tonight I'm asking...
3yrs; Day 1424 – stubborn determination
“Listen to the mustn'ts, child. Listen to the don'ts. Listen to the shouldn'ts, the impossibles, the won'ts. Listen to the never haves, then listen close to me... Anything can happen, child. Anything can be.” ― Shel Silverstein Corey, People frequently ask me how do...
3yrs; Day 1423 – PT & OT exercises
Hi Everyone, We had a fun visit in NY. We not only saw family but 2 of my closest high school friends as well. Today we were back at work. Corey's left leg was VERY stiff. Busy weekends away are great but she doesn't get the same level of stretching and exercise that...
3yrs; Day 1419 – from Corey and Marie
hi everyone its corey (and Marie) C-thank you all for writing me. i really like a lot of the suggestions for fun things to do. (M-thank you for your posts and the private notes forwarded via carepage and email. Your words of encouragement help me talk through Corey's...