4yrs; Day 1473 – Brain Injury Conference; presentation for caregivers
Hi Everyone, I’m hoping this entry doesn’t read in circles. One of the journaling techniques I’ve learned is ‘free writing’. Its purpose is not to censer your thoughts; write as if you were speaking out loud to a friend. Well my friends, you have no idea how valuable...
4yrs; Day 1468 – Rx changes function
Hi Everyone, Natalie tested Corey on her timed long distance walk, her timed short distance walk, her timed sit/stands and her staircase test. Good news/Bad news... Bad news-Corey's numbers dropped (we will confirm against the documented numbers from last month...
4yrs; Day 1466 – Rx changes function
Hi Everyone, We have been working through the medication changes as best we can. There are some good signs and some concerning signs with the change; all of which was to be expected. Corey has shown signs of two simple partial seizures, delayed speech, sudden onset of...
4 years
Life is a series of collisions with the future; it is not the sum of what we have been, but what we yearn to be ~ Jose Ortega y Gasset Hi Everyone, Yesterday was an emotional day. Tears randomly flowed. I closed the day with the usual search for inspiration to help me...
3yrs; Day 1459 – from Corey
hello everyone, this is corey who has bean busy for quite a long time. i apologize so much; however, now i am back on with my computer so i hope you're not trying to get rid of me yet. 1. i have been exercising my butt off 2. i also got botox which will help me to get...
3yrs; Day 1458 – cooking lessons
Hi Everyone, FYI...The annual LAUGHTER IS THE BEST MEDICINE comedy night hosted by Caitlin will be postponed. Caitlin's final's wrapped up for this quarter but she starts the next quarter immediately. Our part-time comedian is working towards her graduation from the...
3yrs; Day 1454 – Rx changes function
Hi Everyone, Rainy thursday means another migraine for Corey. Don't think that let it stop her though. She worked hard during OT and PT. She was sore from the shots but our therapy team was excited to tell us that they think the shots are working immediately! Corey...
3yrs; Day 1453 – botox
Hi Everyone, I received a call at 10:45am from the doctors office (I was planning to leave at 11am). My heart was in my throat as I saw the caller ID. I answered with hesitation. The nurse told me the botox arrived and was waiting for us. WHEW!...now I can make the...
3yrs; Day 1451 – Rx changes function
Hi Everyone, I began the day with a Monday morning update call to the DC doctors. They are deferring to the Seizure specialist for the new administration dosages and timeline but everyone is in agreement with the medication choices. We did witness a 'quiet' episode...
3yrs; Day 1450 – Team Corey
Hi Everyone, We had a very special weekend. TEAM COREY, which consisted of runners from NY, PA and MA, ran in the Philly Rock and Roll Half Marathon, For those of you new to our carepage, Corey's cousins were running in this annual race 4 years ago. Christy, (very...