2yr; Day 822 – prove me wrong
Hi Everyone, Don’t be afraid to try something new. The ark was built by amateurs and the Titanic was built by experts! ~ Anonymous Corey and I continue to try something new everyday. Some of our new trials include holding onto a counter to balance her stance, eating...
2yrs; Day 821 – New Year’s eve; permission to look at the future
Hi Everyone, New Year’s Eve gives us permission to look at the future. It’s a night for planning. It stirs hope, anticipation, excitement, surprise, adventure, joy and allows us to wish for what ever we want. It’s a night to dream big! New Years day the work begins to...
2yrs; Day 819 – 2steps forward, 1step back is still 1step forward
Hi Everyone, One of my close friends sent me one sentence today ~ two steps forward and one back is still one step forward. I have been repeating this sentence to myself all day as I try to regain perspective on where we are, where we were and where we want to go. I...
2yrs; Day 817 – state of panic = tears for mom
Hi Everyone, There is an emotional piece to TBI that consistently surprises me. Our daily ritual is regimented by an alarm clock, Morning medication, breakfast, exercise sessions, lunch/nap, afternoon medication, exercise sessions, dinner, evening medication, spa...
2yrs; Day 816 – Advocacy
Hi Everyone, The holiday break validates our mission to maintain the acute level of rehabilitation. The level of care for an inpatient stay is 18 hours weekly. When we moved home, we fought for 15 hours of therapy which we received from our school district and private...
2yrs; Day 814 – returning Baby Jesus
Hi Everyone, In past entries I’ve mentioned Corey’s childhood friend Selina. They met in Kindergarten and have remained close friends. Selina’s parents, Paul and Lisa, “adopted” Corey years ago. Paul always reminded Corey of her Uncle Tom (which meant Paul would...
2yrs; Day 813 – a few planks still missing
Hi Everyone, It’s been a good weekend. Corey and I had fun wrapping even with the 3 cats chasing after the ribbons and bows. We’ve adapted some of the usual traditions to what has become our cat-free tradition. One example; instead of a Christmas tree, we have garland...
2yrs; Day 811 – set backs vs. momentum
Hi Everyone, We missed last night’s entry because Corey and I fell asleep in the family room! This week has been a good week, but VERY long. Yesterday, Natalie reviewed Corey’s Lokomat progress with us. Her first session was September 10th. She walked 72 meters in 4...
2yrs; Day 807 – No feeding tube!
Hi Everyone, Today was a monumental day…another milestone…NO MORE FEEDING TUBE! We met Dr. Long after Corey’s day of therapy. She transferred to the exam table to lie down. Dr. Long asked her if she knew what crunches were. She demonstrated a partial sit up. He loved...
2yrs; Day 804 – memories of heaven
Hi Everyone, Like millions of families across the country we watched the coverage of the Sandy Hook shootings. We were silently watching; I was crying thinking of the parents that got the call no parent wants to receive. I was thinking of the personnel that had to...