2yrs; Day 837 – our ICU nurse
Hi Everyone, Dr. Yalamanchelli referred us to Dr. West. She was wonderful with Corey. Our visit was almost two hours long. She confirmed that Corey has a tumor on her pituitary gland; it is not cancer however it most likely will have to come out. She is very glad to...
2yrs; Day 835 – the process of appeals
Hi Everyone, Long day…unfortunately, I miss understood the decision from Medicaid. The Medical Director did not approve skilled nursing. She approved a home health aide as well as depleting the current hours we currently have (and still attempt to fully staff) to 1/3...
2yrs; Day 834 – APPEAL, APPEAL, APPEAL
Hi Everyone, It’s time Corey and I take our training wheels off. For Corey, we have been parking the wheelchair in the foyer and she has been walking with me throughout the house. We are also beginning to experiment with a walker. Corey can not stand independently;...
2yrs; Day 831 – the “Business” of Insurance
Hi Everyone, Definition of Advocate 1: one that pleads the cause of another; specifically: one that pleads the cause of another before a tribunal or judicial court 2: one that defends or maintains a cause or proposal 3: one that supports or promotes the interests of...
2yr; Day 830 – Brain Steps
Hi Everyone, Last night wasn’t as restful as I had hoped. My eyes were closed, unfortunately my mind was wide awake! I did receive a call but not with the news I was waiting for. Some of the documentation did not get faxed until today, so we must wait another...
2yrs; Day 828 – Memory loss
Hi Everyone, We had an important discovery today. Kate and Elaine (Bryn Mawr) and Beth and Brittany (teachers from the HS) work with us not only on Speech and OT but Cognitive therapy as well. In addition to working on Corey’s short/long term memory; we have been...
2yrs; Day 827 – Where are we going tomorrow?
Hi Everyone, My sister called me this weekend to comment on Friday’s post. She loved my car therapy. She applauded the technique and congratulated me on releasing all the internal turmoil. She reminded me, “You are most affective when your anger is below a calm...
2yrs; Day 825 – caregiver therapy
Hi Everyone, I was going to write a post for all the caregiver’s out there but decided that today’s “day from hell” could be anyone’s day. I am in the middle of 3 appeals with Medicaid for Corey. I can’t give details yet, but I spent the week stealing moments to call...
2yrs; Day 824 – Deal me in
Hi Everyone, Since you’re already sitting down and pulled up to the table, let’s “Deal” you in. Games, and the rules to games, can be very tricky for Corey. For those of you who know Corey well, rules didn’t really apply to her in general and she always changed them...
2yrs; 3 months – $ Retail Therapy $
Hi Everyone, We are very lucky to have a great team working with Corey. This includes one of our favorite nurses, Jamie. We have adopted Jamie as one of our own. Even though she is 2 years older than JohnPaul, she doesn’t want to be the oldest, so she has decided to...