2yrs; Day 881 – sparks of healing
Hi Everyone, March 1st...really? We are happy it's Friday! Corey is sleeping beside me, finally resting from a terrible migraine that lasted all day (the result of yesterday's testing I'm sure). I am feeling very calm and grateful tonight. I truly appreciate our...
2yrs; Day 880 – Wills Eye
Hi Everyone, I am incredibly impressed with Dr. Hall and her team at Wills Eye. They had the pleasure of not only meeting Corinne but spending 5 hrs with her! Although it was a long day, Corey did an amazing job communicating her answers as the team thoroughly tested...
2yrs; Day 879 – progress update
Hi Everyone, We have a few updates for you. We are still waiting on the infusion results for more information about the pituitary tumor but the ultra sound of Corey's bladder showed dilation in the right uriter between the kidney and the bladder. We have an...
2yrs; Day 878 – emotional maturity
Hi Everyone, Just in case you were wondering if GOD has a sense of humor, feel free to spend a week with us…and it’s only Tuesday! When we arrived at Bryn Mawr at 10:50am, I smelled an unusual odor emanating from under the car. It caused a slight concern but I knew I...
2yrs; Day 873 – Stay in the game
Hi Everyone, Corey's level of awareness is expanding. This is positive and encouraging but incredibly challenging to cope with on a daily basis. She fights me all day as her level of anxiety escalates with each transition in her schedule. Today I pleaded with her not...
2yrs; Day 900 – She’s A-Typical
Hi Everyone, Today Corey and I had separate agenda’s. Corey worked with Jen and Brittany. Jen was surprised and pleased to walk with Corey using the walker. They walked from the matte in the living room into the foyer, down the center hall to the kitchen and completed...
2yrs; Day 872 – 1st Level Appeal
Hi Everyone, This morning was our first level appeal for continued skilled nursing. I attended via teleconference. When you go through an appeal with Medicaid, they actually use the appeals department at Blue Cross. We submitted two letters of Medical Necessity, two...
2yrs; Day 871 – encore
Hi Everyone, We received the copy of Corey’s Lokomat video from Bryn Mawr. As soon as my tech savvy daughter, Caitlin, can work her magic we’ll have it up for public viewing. (We all have our strengths and I am aware of my limitations!) After Bryn Mawr, Corey and I...
2yrs; Day 870 – relearning to walk “together”
Hi Everyone, We had two very good moments at Bryn Mawr today. Typically, Corey’s gaze does not wander from me. When others are speaking with her, she remains fixated. We have been trying to work on this for obvious socialization reasons. Today, I asked Corey why she...
2yrs; Day 869 – as she gets better; it gets harder
Hi Everyone, Friday I had the opportunity to meet Danny Bader, Inspirational Speaker and Author of ‘Back from Heavens Front Porch’. Our introduction was perfectly timed as it’s been increasingly difficult to sustain a positive perspective for our daily rituals. Danny...