Archives

Read Our Story!

3yrs; Day 1156 – from Corey

hi everyone its corey

can you even believe its december 1st? think about how much time has passed us by and yet how much is yet to come.

this week will be filled with exercising which for a lot of people is not fun, including me, but its getting me even closer to being on my own. so i dont see it as so bad because i am able to look at what i will be able to do one day.

it’s tricky thinking – you trick yourself into thinking its not so bad and then you can get through it even easier.

really over all i think i am happy, i dont know why but i am more or less. i think its because i am a positive thinker. if you are doing something you dont want to do maybe this would help you too? give it a try, xoxo

3yrs; Day 1150 – from Corey

Hi Everyone it’s Corey and Marie,

Tonight we are going to share some sad news with you that actually reminds us of the infinite possibilities of living life.

Corey and I have met many survivors and families during her recovery. We first met Francis through an introduction from my sister Louise. He was a sophomore at St. Joseph’s University several years ago when he was in a car accident Francis was severely injured. In fact, the doctors kept him in a medically induced coma until his injuries progressed. As he recovered, he needed over 100 surgeries just to his face.

We began talking with Francis when Corey was first admitted to Bryn Mawr. His father, Frank, coached me on some advocacy strategies and Francis wanted to be a positive role model to Corey. He called her “my sister Corey”. He believed all survivors were part of the TBI family and they needed to stick together and encourage each other.

Francis would write us regularly, skype occasionally and always wanted to know what ‘new things are happening this month’. He applauded Corey’s achievements as well as shared his own life accomplishments to show her he was working hard every day too.

This year he was thrilled to share that he became a certified personal trainer and his writing skills earned him a regular column with the NFL insiders training magazine.

We received an email tonight from his Aunt. Francis left the Giants game last night and was in another car accident. He was rushed to the ER, tried his best to fight, but unfortunately Francis passed away. He is now our Angel of Possibilites.

hi everyone its always hard to top your moms speech but i shall try my hardest.

francis worked really hard and he always made me realize that i have achieved a lot. we both knew to be thankful for everyday not only thanksgiving day and i am happy he got to his football game because i am sure he had fun.

so now instead of writing him i have him and my grandmother up in heaven looking down.

uncle tommy and aunt marjy have a tradition at thanksgiving to say thankfuls instead of a prayer. don’t wait for thanksgiving dinner to say your thankfuls be thankful every single day and dont forget to believe that everything is possible. francis taught me we have to keep proving that, xoxo

3yrs; Day 1147 – from Corey

hi everyone its corey

today is one of those happy weekend fridays. i am sitting at home waiting for my sister. it was a good day so far. 1st i emptied the dishwasher and just for fun grated cheese for dinner and i looked up recipes for thanksgiving dinner at Uncle Tommy and Aunt Marjy’s house. i know most people would be scared having a 20 year old help make turkey dinner for them but this 20 year old wants to go to school to be a chef. what can i say, my dedema must have passed down the cooking gene to me.

i hope that everyone reading this will have a good weekend; and if this inspired you at all hopefully you can try making something new this weekend too, xoxo

3yrs; Day 1146 – from Corey

Hi everyone its corey,

there are some days me and mom have no idea what to write but today i sat here and read your inspiring letters and i realize that no matter what, i can not give up or give in because then i will stop getting better and really that is not part of my personality.

sure sometimes i get frustrated but really, who does not? it means a lot to me to read your letters and it inspires me to keep going

its amazing how you never know where you will end up in your life. i read a letter from a woman i never met. she wrote to tell me that she was in graduate school when i had my accident. she decided to work as a speech therapist with children in a hospital because of me. sometimes people can change what you are meant to be and sometimes people can change the direction of your life. my life had unplanned turns too but i hope to soon be fully recovered and find my own direction. that takes a lot of patience which is not part of my personality either.

i hope that God is inspired to speed things along, xoxo

3yrs; Day 1145 – from Corey

Hi everyone its corey

I didn’t know what to write tonight so I asked what I was doing tonight over the last few years.

Mom told me;
4 years ago I was thinking about culinary school
3 years ago I was in the rehab literally a lump of love unable to move anything
2 years ago I was moving my right leg and right arm
1 year ago I passed all my swallow tests and could eat
Today I cut onions with the help of my OT using both hands and stood at the kitchen counter to make homemade Onion Soup

I get frustrated and angry every day but my mom reminds me of what I have done and it helps because without trying everything then I pretty much remain a big old lump.

Nobody likes lumps especially in their mashed potatoes and there are definitely no lumps in my Onion Soup.

I hope that you all liked reading this and even though every day might be hard please be patient if you have any lumps in your life, xoxo

PS – enjoy our new video i mean bon appetite!
Corey Beattie Onion Soup

3yrs; Day 1143 – from Corey

Hi Everyone,

Corey wants to title this carepage “Corey Beattie walking on the road to a new life”

Today Corey walked her longest distance to date; over 1,000 feet! As if this is not enough, tonight we filmed another achievement we’d like to share with you. Corey normally practices her sit to stand exercises with a ballet bar. Today she practiced standing from her wheelchair at Bryn Mawr. We came home to show Caitlin and tonight she showed off as she stood from her kitchen chair! As a bonus, Caitlin continued to film her isolated stand and her walk to the bathroom…ENJOY!

Hi everyone that was mom and now it is corey
I am on my way to a new life
A new life because I don’t have to rely on any one to push me if I want to get something, just stand up and get it.
There are some other new things in my life; I am just full of surprises!
Soon I will be getting my high school diploma to go to college and my aspiration is to be a chef.
And do not forget I have to keep improving to walk down the aisle and dance at my brothers wedding which we don’t know when that’ll be yet; it’ll be a surprise to all of us whenever he and Jackie decide to tie the knot.
And I can not wait for thanksgiving to go up and see my family in NY because I always like to impress them with something new. For example, standing and walking all alone ~ no big deal…everyone does that, right?

Don’t worry, we will keep showing you videos of me improving as its happening.
I promise! Xoxo

Corey Beattie Stand Up and GO

3yrs; Day 1139 – Therapy update

Hi Everyone,

We have a few therapy updates to highlight.

Tuesday Corey increased her water walking to 15 laps. She also perfected her Ester Williams routine with synchronized movement! She floated on her back, head rested on my shoulder, as Paul helped her with her water angels. He asked her to move her left leg and left arm in unison. The leg moved left but the arm remained stationary. He held her leg until her arm began to swing and then moved the leg to work with the arm. It takes time for the brain to process the command, follow the direction, then stimulate the movement. Repetition #2 was similar but by #3 her brain and body were working together. The pattern was repeated on the right side and then moved to all 4 limbs moving in unison out then in ~ another first!

Second command, lifting Corey’s knee’s to her chest as she pulled her hands upright towards her chest. Paul isolated the individual movements to the basic back stroke. Next week we’ll try to pull it all together UP, OUT, TOGETHER!

Wednesday we had a VERY long eye appointment. It was a second opinion for her visual field cuts. The risk in a second opinion is receiving two opposite opinions, which we did. Both Neuro-Optometrists agree there is a field cut to Corey’s vision from midline to the left; however, yesterday’s Doctor needs further tests to confirm if it’s in fact from the pituitary tumor. This isn’t a bad conflict. None of us want to rush Corey to surgery if we don’t have to. February is our next set of tests.

Today Corey rode a new elliptical recumbent bike. Corey was very comfortable moving her legs and arms as she maintained her speed for 15 mins! We spoke to my brother, Uncle Tom the Great, his question is ‘why don’t we put wheels on that thing and really watch her take off”! Well, we “sort-of” tried that…today I sat in Corey’s wheelchair as she held onto the chair handles to push me down the halls! She pushed me 200 feet. I told her she has to start practicing now to take care of me in my old age.

Hi everyone it is corey
Another important announcement is my sisters birthday today. Happy birthday to the best big sister in the world!
Not only do I love that my sister is really funny but everything she does I have fun with pretty much. I love you Caitlin thhhiiiiissssss much! kisses and hugs xoxo

3yrs; Day 1137 – No Shave November

Hi Everyone,

Tonight we’d like to share words from one of Corey’s old friends; Courtney (aka Chicken …don’t ask about the nickname). The girls were very close friends from cheerleading. Courtney is a junior in college. She submitted a story to her college newspaper and it was chosen for the Front Page of the November edition.

Thank you Chicken for this lovely tribute inspired by Corey;

No Shave November

Walking into the gym in the middle of November, I scan the room to see my teammate’s faces clean shaven. This was a surprise for me to see that most students in college didn’t participate in this tradition. No Shave November is a month of no shaving in which, mostly guys decide to let their facial hair grow. Little did my friends know my secret, until my teammate shouted loudly “EW, YOUR LEGS ARE GROSS! WHEN IS THE LAST TIME YOU SHAVED!?”. Yes indeed, I myself decided to participate in the month of No Shave November. I know what you are probably thinking, girls participating in No Shave November is not the prettiest sight, but in my defense it was for a pretty good reason.
Many people carry this tradition throughout the years mostly pertaining to the humor, but what is this month really about? One popular motive is to raise awareness for those who suffer the deadly disease we all hate and fear, cancer. The idea of the cause is to embrace our hair. As many may know, cancer results in hair loss after chemotherapy and/or surgery. So instead of getting rid of it, keep it! Also, many people decide to donate money to charities that support this specific cause. The money that you may have used to buy shaving cream and razors could easily be used to help raise money for these charities. Growing out your hair reminds society of the suffering people have to go through every single day with living with this illness.

I was introduced to the idea around age fourteen, when I was committed to a competition cheerleading team with girls who were close in age to me located in the Kennett square. My great friend Corey Beattie proposed that as a team, we should participate in this event before every major competition season starts. I thought to myself, “I’m pretty sure only guys do this”. We thought she was just kidding, so we all just laughed and didn’t think anything of it. With her being the energetic unpredictable girl we knew and loved, she arrived at practice the following week with a huge grin on her face. We had no idea why she had this stubborn look, until shortly after rolling up her pant leg for all of us to see.
There appeared Corey’s legs coated with thick black hair resulting in just a week of no shaving. Was she crazy? Maybe, but surprisingly, it was pretty impressive to the team that she wasn’t kidding after all. This idea may have been a little out there, but with our team being so close and full of humor, we all immediately joined in. When the month was coming to an end after shaving our skin stood baby smooth for our first competition! What better way to go into the beginning of the season confidently and feeling fabulous.
​Three years ago, will be the day that I will never forget. Our lives were shaken up resulting in an incident that Corey was in. Unfortunately she was the passenger in a serious car accident that should have taken her life several times. She was hit on her side by a truck at a dangerous intersection hard to see around. Corey suffered with many injuries throughout the body, but the far worst one was her traumatic brain injury. I couldn’t wrap my mind around the fact that this happened to a close friend of mine. It made me realize how your life can change in a matter of seconds and that scared me a lot. It was heartbreaking to a lot of close friends and family to know that she may not be the same girl every again that we knew and loved.

Although she was about to walk down a long road of recovery, I knew that everyone would be behind her every step of the way. And we were/ still are. Her mother asked all of us girls on the team to participate in a fundraiser for Corey, to carry on the tradition she proposed, No Shave November. Of course none of us hesitated to join in on this affair; we knew she wouldn’t want it any other way. There were lots of t-shirts created for the fundraiser, and delicious food sold to us that you couldn’t resist getting.

After a long month of not shaving our legs, we met at our old practice gym with shaving cream and razors where the fundraiser was held. Looking around and seeing my fellow teammates shaving their legs in the middle of the gym, was a little weird, but also hilarious. There was a lot of giggling and memories shared throughout the afternoon, not a frown was to be seen. The fundraiser was a successful one, in which they decided to have other fundraisers along with this one to help Corey pay her ridiculously high hospital bills.

As funny, weird, and gross No shave November sounds to participate in it is a great fundraiser all around. I am proud to say that I am till this day a participant in no shave November. Giving up a month of shaving my legs always reminded me of memories throughout the years of our friendship. With November creeping around the corner, I encourage you to join in with us on this ridiculous month, not only to laugh at the results but to maybe help someone in need.

3yrs; Day 1136 – Advocacy WIN

Hi Everyone,

As you know Friday we received a call from our primary insurance stating they were unsure about approving additional visits. Our policy allows for 60 PT/OT/ST sessions combined as a LIFETIME benefit. Not annual, LIFETIME. The insurance company was not convinced I understood the limitations associated with a Lifetime benefit and felt it was in our best interest that they judiciously administer the benefit disregarding the facts documented weekly that justified approvals. We have 9 visits left and then Corey’s secondary insurance will act as primary. She will then receive 24 visits per discipline as long as she shows functional improvement. Her secondary is more familiar with Neuro Out Patient documentation and we received the 24 session cycle for the first year of out-patient.

After our conference call on Thursday, our horrific week with Corrine and the pending decision call at 2pm on Friday I came as close as I’ve come to a nervous breakdown since the last few months of our inpatient days. Our case manager at Bryn Mawr is new to her position but very good. She was the messenger at 2pm. I asked her to call the insurance company’s clinical manager and leave a message that we would be driving one hour in one direction on Monday. We insist on a decision Monday morning because we will be having PT at 2pm. If we do not receive the final 9 visits, the mother of their client has requested a conference call with her and her supervisor at 12 noon.

I turned off the phones and the internet, escaped Saturday and prepared our argument with statistical information on Sunday.

We arrived today for Speech *as planned and coverage was previously approved.
At 11:50, our case manager knocked on Kate’s door. I excused myself and joined her.
CM-Did you call anyone at the insurance company?
M-No, I was waiting until today
CM-you swear you didn’t call anyone
M-No! We’re going to call them after Speech, did you hear from them
The case manager handed me a faxed form…all 9 visits were approved!
CM-what the heck happened? She said on Friday she wouldn’t approve all 9. She has been giving us a hard time for weeks!
M-All I can tell you is I put it out on the CarePage and asked for prayers…it’s divine intervention!
CM-it has to be because this woman was not giving an inch. She gave us a hard time as if it was a personal vendetta
Natalie and Elaine walked by as Corey joined us. They were giddy with excitement that we won.
Corey looked at them and said, “They are afraid of Marie, she wears them down”…we all laughed
Thank you for all your prayers; guess I can tell the flying monkeys to stand down now!

I had a physical wave of relief come over my body. I was not aware of the magnitude of the stress that had built up in my chest.

This brings me to a very important lesson. If we can teach you anything from our journey please learn this. Please read your healthcare policy. Check length of stay as an inpatient, rehabilitation coverage as inpatient and outpatient and your home, health and hospice coverage. Most people look at their deductibles for pharmacy and if they need referrals for specialists. There is much more to consider. Our circumstance could happen to anyone of you. Accidents happen. Please look into your total coverage.

In addition, if you have a child under the age of 18, please discuss what would happen if they are in an accident. It’s a difficult conversation to have but if it happens, you as a parent and/or sibling will have no legal rights to any health or financial decisions on behalf of that child once they turn 18. A simple statement of who they would like to make medical decisions on their behalf, signed and notarized by you both will protect you if an accident happens. Otherwise, you have to go to court to fight for guardianship to protect your child from the “state” making decisions for them. This is an important document for spouses or significant others as well. Protect your right to advocate for your loved one!

Finally, don’t be afraid to fight. It’s exhausting but no does not mean no. There are several levels for appeal that are all within your rights. The policies don’t point out your advocacy rights but they do exist as you all have seen. Never give up and never give in and NEVER take NO from someone that can’t say YES!

On to a happier note and speaking of YES….our family is very excited to announce that JohnPaul proposed to Jackie and she said YES! Every day is a new day filled with reasons to keep looking forward Corey’s new PT goal…to walk down the aisle for JohnPaul and Jackie’s wedding without a walker! She also wants to dance with her brother at the reception. We’ve got a lot of work to do to achieve that and we will continue to fight everyday to make sure we do! xoxo

3yrs; Day 1135 – Advocacy; functional improvements

Hi Everyone,

We weathered another tough week. It was not only rough on us but two of our nurses as well. Our regular nurse (one day a week) almost quit last Wednesday, Our new nurse (in training) cried on Friday (as did Caitlin and I) There are rough days and weeks to our new normal as you all know but with the added stress of new appeals, Corey’s fatigue for therapy and no closure to this new direction, we’ve been in rough waters.

Caitlin and I split this weekend to give each other a full day and night off. She took Corey to the mall yesterday as I spent the day with friend at Longwood Gardens and then had dinner out. Today Caitlin is out with her boyfriend. Corey and I spent the day finishing laundry and cooking for the upcoming week. Thank goodness we could share the responsibilities of the weekend and step away to regroup.

Part of today was discussing therapy. Corey and I watched old videos and talked about her progress. We talked about how hard it is to keep working when you don’t know how much has been accomplished vs. how much more needs to be achieved.

Our conversation is timely as today I was also preparing for our weekly appeal. The clinical manager has asked for specific measurable functional improvements we see at home that are directly related to the exercises reported by our Bryn Mawr therapy team. *they are “only” asking for documentation from August to present day.

I began to calculate the measurement of time;
August 1st to present day = 14 weeks; 51 billable hours
(this does not include the home therapy or pool hours)

The following are some of our documented functional improvements;
– walking is more cohesive
– beginning to stand unassisted
– pulling herself up to utilize the double arm platform walker
-propelling the walker independently including maneuvering a turning radius
-lifting her legs to get in and out of the car
-riding in a car without a wheelchair
-raising her left arm unassisted by her right arm
-applying deodorant (with the left hand-new this weekend)
-pulling up her socks from her ankle
-struggled but put a glove on her right hand using her left hand as the primary (another new 1st this weekend)
-writing grocery lists and journal entries
-reading
-beginning to recognize time with an analog clock
-texting on my iPhone to her brother and sister (also new this week)

Last week the clinical manager actually suggested that the overall length of time it’s taken Corey to show functional improvement suggests that perhaps “it hasn’t been affective enough to show dynamic changes of functional improvement”.

Let’s first consider the ‘overall length of recovery’
10/22/2010 – Corey’s first day of rehab to present day = 159 weeks 2 days
Calculating her length of stay as inpatient receiving 18hrs/week + the hours of home therapy as well as outpatient therapy averaging 15hrs/week = approximately 2,634 total hours.

Secondly, let’s highlight Corey’s initial evaluation for admission to the acute care hospital. She almost didn’t register on the Glasgow Coma Recovery Scale; she was barely a 1 out of 8 – most hospitals will not admit a patient at a 3.

Finally, how can you not consider her starting at near death, a coma, full body paralysis, incontinence, being fed and hydrated by a feeding tube and not speaking to walking, talking, moving all limbs independently and eating/drinking independently; the transformation is the definition of dynamic change and functional improvement!

Corey will not be skipping rope this week nor is she grocery shopping, managing money, cooking independently or resuming her job at the candy store…YET! Consider this final analogy; an infant takes almost 2 years to walk, talk and eat independently. Almost 3 years to become continent. Almost 5 years to dress themselves. Almost 6 years to read and write affectively. Almost 8 years to understand the value of a dollar and 16 years before they can apply for a job all without a brain injury. I say Corey’s overall length of recovery time has her ahead of most “normal” people!

Joking aside, please continue to pray for me as Corey’s advocate. More importantly continue to pray for Caitlin, too. She loves her sister and this is very difficult on her as she tries to live the “normal” life of a 23 year old. We both need more patience, perseverance and stamina. There have been 2,634 professional billable hours in the last 159 weeks. In actuality, there has been at least double that in family dedicated hours. We are still trying to figure it all out.

Tomorrow we begin a new week with new battles. We need each of you to hold onto our sails…full speed ahead, **** the torpedoes! xoxo