1yr; Day 719 – 1,332 feet
Corey, People ask us all the time; Where do you find the energy when you’re exhausted? ~ 1,332 What do you whisper to your self when you don’t want to do one more task? ~ 1,332 How do you keep working so hard without knowing if you’ll get better? ~ 1,332 How can you...
1yr; Day 717 – You’re kidding me smalls!
Hi Everyone, Today was a very good cognitive day! On the ride to Bryn Mawr Corey was repeating her usual questions. The sequence is always the same. The pattern and frequency is a sign of rising anxiety. Our answers are direct and repetitive to help her reorient and...
1yr; Day 716 – gaining trust
Hi Everyone This should probably read "good morning"! Yesterday was one of those days that by the time I got Corey settled and asleep, I allowed myself to sit down and write. I sit in my favorite chair, prop the laptop on my lap, close my eyes as I take a deep breath,...
2yrs; Day 745 – just a bump in the road
Hi Everyone, It’s evaluation week again. Corey is making great physical progress but it’s always nerve wracking when we never know who will approve or deny her continued therapy. There are some things that continue to challenge us on this path! Elaine, OT, is very...
1yr; Day 715 – missing puzzle pieces
Hi Everyone, Today was the big race. Team members wrote “For Corey” on the back of their calves and forearms. Corey was waiting for them at the finish line. I was apprehensive about the noise from the bands and her comfort levels with the thousands of spectators...
1yr; Day 714 – Stone Soup
Hi Everyone, We had a fun night! We drove into Philly to meet the members of Team Corey for the 2nd annual ING Rock and Roll ½ Marathon (Check out the photo gallery) This year we have 16 runners, 12 joined us for dinner. Their goal was to raise 15,000. At dessert, the...
1yr; Day 713 – Caring for the Caregiver
Hi Everyone, “Caring for the Caregiver” A few weeks ago I wrote about balance. That word is incredibly difficult to define when you feel like your keeping the balls up in the air, all the plates spinning and a hula hoop from dropping down to your ankles! How many...
1yr; Day 712 – Name that tune
Hi Everyone, Today was a pretty good day. Corey is still having tantrums but she is responding to me almost immediately and she seems to get herself calmed down much faster. We had ST and PT today. Speech Therapy was tons of fun…primarily because Caitlin joined us and...
1yr; Day 711 – reality thinking
Corey, A friend of ours stated that reading the carepage and coming to visit us are two very different experiences. This journal is not meant to sugar coat your reality but to share the factual information detailing the efforts of you and your team during your...
1yr; Day 709 – Super Suit
Hi Everyone, Today was a migraine day but guess who pushed through it? Corey was a little quieter this morning and the ride to Bryn Mawr was not filled with the usual repetitive questions; we actually drove in silence most of the way! (That should have been my first...