2yrs; Day 968 – Kids weekend = caregiver respite
Hi Everyone, Technically it was Memorial Day but for me it was Mother’s Day. The kids came home on Friday and declared “kids weekend”…no one under 30 allowed! I found a room in a small town near the Chesapeake not too far from home (just in case I had to get back ~...
2yrs; Day 963 – if I can make it to bedtime
Hi Everyone, Thank you for your encouraging notes. This journal has been a great source of love, friendship, support, encouragement and Hope for our family. As you know from your own lives, some days are just plain hard. But as Corey says, “If I can make it to...
2yrs; Day 962- Sanity relies on Perspective and Distraction
Hi Everyone, We managed to get a few hours sleep last night but climbed back into the ring this morning. I had to break the circuit at one point, stepping out of Corey’s room into the hallway. As she screamed for me I stood against the wall, closed my eyes, and...
2yrs; Day 961 – Where’s the bucket of lemons
Hi Everyone, There has been a blank document sitting in front of me for over an hour. Writer’s block ~ sort of…it’s more like a motivational block. I’m struggling to find positive words to carry me. Today was one of those days I wish I had a magic wand to wave so...
2yrs; Day 960 – Corey’s Fightin’ Phils
Hi Everyone, We had a relaxing weekend that closed with a WIN…a Phillie’s win! Our friends the Sifer’s invited us to an afternoon game today. Corey was very excited. She asked me to get on the internet; “I haven’t been watching. I have to see what the boys are doing”....
2yrs; Day 957 – Capital Hill
Hi Everyone, It was a long but productive day in D.C. yesterday. Our goal was to discuss networking opportunities with members of Congress and the Senate to further educate the legislators on Traumatic Brain Injury, including lack of funding for research, critical...
2yrs; Day 955 – a specialists request
Hi Everyone, We had a successful day, not one glitch in the plan! Our day began at Jefferson with Corey's seizure specialist. Dr. S. hasn't seen Corey since October. He was shocked to witness her progress (he met her when she could not speak and had limited mobility)....
2yrs; Day 954 – A great adventure
Hi Everyone, Tomorrow will be a great adventure. I may or may not get to post tomorrow night but didn’t want you all to worry if we didn’t. We will be heading to Philly to see the seizure specialist for an early afternoon appointment but then head to Wilmington to...
2yrs; Day 953 – Mother’s Day gift
Happy Mother's Day, Last night Caitlin took the night shift. We switched this morning at 6am. After morning meds Corey and I fell back to sleep as she was miss party pants keeping Caitlin company between 1-4am. We slept in until 10am! Corey's usual morning questions...
2yrs; Day 950 – “don’t think I’m disabled”
Hi Everyone, It’s hard to believe that one year ago today Corey had tendon lengthening surgery. At that time she was just beginning to eat soft solids, still had formula during the night in her feeding tube, couldn’t move her left arm and was just managing to propel...