3yrs; Day 1397 – Standing by me

Hi Everyone, The attached poem was written by a survivor. Her words have affected Corey in many ways. The words cling to her and she can identify with its message. She asks me to reread it because, as she says, “this is how I feel too”. Although it was...

3yrs; Day 1396 – Time to Exhale

THANK YOU to everyone that prayed and held their breath with us. THANK YOU to every angel and Saint I have been bombarding with my pleas….but the biggest THANK YOU goes to the Bryn Mawr team…I just got a call; We have 24 more PT visits! That gets Corey 12...

3yrs; Day 1394 – Insurance & TBI

Hi Everyone, I received a call on friday from our case manager at Bryn Mawr. Natalie, PT; Anne, OT; Dr. Long and Dr. Freedman (the specialist that injected the botox) collaborated on a letter to send to the Medical Director at Keystone Mercy Medicaid. The letter will...

3yrs; Day 1390 – Chores & Lists

Hi Everyone, Unfortunately, sleep continues to elude me so I focus on what new ‘reality’ therapy we can work on. In addition to our home PT, today’s distractions were ‘Chores and Lists’. I use large 5×7 index cards to write the...

3yrs; Day 1389 – Supermarket therapy

Hi Everyone, This week we have to focus on positive distractions. The insurance waiting game is incredibly nerve wracking, so keeping busy is the best alternative. Today we began the day with addition flash cards. You all know Math is NOT Corey’s favorite...

3yrs; Day 1388 – Living to try

Hi Everyone, We’re in another stressful “hold your breath” reauthorization period. Natalie is writing her letter to medicaid to ask for more sessions. Incredibly, we are in the “it’s unheard of” category for length of approved...