3yrs; Day 1451 – Rx changes function

Hi Everyone, I began the day with a Monday morning update call to the DC doctors. They are deferring to the Seizure specialist for the new administration dosages and timeline but everyone is in agreement with the medication choices. We did witness a...

3yrs; Day 1450 – Team Corey

Hi Everyone, We had a very special weekend. TEAM COREY, which consisted of runners from NY, PA and MA, ran in the Philly Rock and Roll Half Marathon, For those of you new to our carepage, Corey’s cousins were running in this annual race 4 years ago. Christy,...

3yrs; Day 1445 – KEP-RAGE

Hi Everyone, Today we saw the seizure specialist at Thomas Jefferson Hospital. Corey’s last “quiet” seizure was thanksgiving eve. It caused facial paralysis to her left side with slurred speech. Fortunately, her muscles returned to full function...

3yrs; Day 1444 – Botox

Hi Everyone, For those of you following our carepage from the beginning, you may remember the blue ultra-flex braces Corey wore on both her legs. She has worn them on/off since the beginning of her inpatient days. The brace stretches the muscles in the back of her...

3yrs; Day 1443 – new eval’s Rx changes

Hi Everyone, This past week and weekend was so busy it feels like a month since I’ve sat down to write. Washington, D.C’s trip was very encouraging. We met with a TBI specialists team. Dr. K is a physiatrist. A Physiatrist is a specialist in Neurology and...